![]() ![]() The lack of a standard universal system to categorize these conditions makes it difficult for data access committees (DACs) and researchers to interpret the conditions in a consistent, structured way. Human subjects datasets often have restrictions such as “only available for cancer use” or “only available for the study of pediatric diseases,” based on the original participant consent, which must be respected when sharing and studying these datasets.Ī current challenge in sharing such datasets for further research is that unique language is used in each informed consent form to describe the secondary use conditions. The (GA4GH) Data Use Ontology (DUO) includes terms describing data use conditions, particularly for research data in the health/clinical/biomedical domain. See here for example.Ĭontact us to tell us about your implementation! DUO - Full documentation What is DUO? the European Genome-phenome Archive (EGA).the Broad Institute’s Data Use Oversight System, DUOS.Several projects have now implemented DUO in production pipelines: Please use this GitHub repository's Issue tracker to request new terms/classes or report errors or specific concerns related to the ontology. The latest version of the ontology can always be found at:Įditors of this ontology should modify the edit version, src/ontology/duo-edit.owl and re-generate the OWL files using the guidance in the src README. It is used in production by the European Genome-phenome Archive (EGA) at EMBL-EBI as well as the Broad Institute for the Data Use Oversight System (DUOS). ![]() This resource is based on the OBO Foundry principles, and developed using the W3C Web Ontology Language. It has been registered with the OBO Foundry.Ĭreative Commons Attribution 4.0 International License.ĭUO allows to semantically tag datasets with restriction about their usage, making them discoverable automatically based on the authorization level of users, or intended usage. The latest version of the ontology can always be found at: ĭUO can be browsed online via the Ontology Lookup Service or Ontobee. Other contributors (in alphabetical order)ĭUO - the Data Use Ontology - the essentials Availability.Data Use Ontology Workstream (in alphabetical order).Research Purpose : Data Use Limitation Matching. ![]()
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